Special Needs Planning

Importance of long-term financial planning for families with special needs individuals

Financial planning is a critical aspect of every family’s life, but it becomes even more crucial when a family member has special needs. With the additional expenses and complexities of long-term care, families must ensure they have the necessary resources and strategies to support their loved ones throughout their lives. Proper financial planning helps families meet their loved one’s daily needs and helps build a sound financial future.

Challenges faced by families in providing adequate care and support

Families of individuals with special needs often face unique challenges in providing adequate care and support. The cost of specialized therapies, adaptive equipment, educational resources, and housing modifications can be substantial, placing a significant financial burden on families. Additionally, navigating the complex landscape of government assistance programs, insurance options, and legal considerations can be overwhelming for many families.

Overview of the article’s content

This article aims to provide families of special needs individuals with an in-depth guide to financial planning for long-term care. We will discuss various aspects of special needs planning, including understanding long-term care needs, government assistance programs, ABLE accounts, private insurance and funding options, special needs trusts, estate planning considerations, and working with professionals. By equipping families with the necessary knowledge and tools, we aim to empower them to make informed decisions and create a comprehensive financial plan that ensures the well-being of their loved ones with special needs.

Understanding the Long-Term Care Needs of Special Needs Individuals

Types of long-term care Services

Long-term care for individuals with special needs can encompass a wide range of services and support systems, depending on each person’s specific needs and preferences. Some common types of long-term care services include:

In-home care: Personal care, therapy, and support services provided within the individual’s home environment.
Residential care: Group homes or assisted living facilities that cater to individuals with special needs, offering a supportive and structured living environment.
Day programs: Services designed to provide socialization, skill-building, and therapeutic activities during daytime hours.
Respite care: Temporary care and supervision for individuals with special needs, allowing primary caregivers to take a break or attend to other responsibilities.
Medical and therapeutic services: Ongoing medical care, physical therapy, occupational therapy, speech therapy, and other specialized services tailored to the individual’s needs.

Factors affecting the level of care required

The level of care required by individuals with special needs varies greatly depending on several factors, such as:

Severity and type of disability: Different disabilities come with distinct care requirements, and the severity of the disability may also influence the level of support needed.
Age and life stage: As individuals with special needs age, their care needs may evolve, and they may require additional support and services to maintain their quality of life.
Health status: Individuals with chronic health conditions or progressive disabilities may need more intensive care over time.
Family and social support: A strong support network can significantly impact the level of care required by individuals with special needs.

Estimating the costs of long-term care

To effectively plan for long-term care, families must estimate the associated costs, which can be influenced by factors such as the type of care services, geographic location, and inflation. Some resources that can help with cost estimation include:

Local service providers: Contact local agencies and care providers to gather information on their fees and services.
National and regional cost surveys: Research the average costs of various care services in your region to create a baseline for your estimates.
Financial advisors: Consult with a financial advisor experienced in special needs planning to help you create a realistic long-term care budget.
Online cost calculators: Utilize online tools and calculators designed to estimate long-term care costs based on location, age, and care preferences.

Families can develop a comprehensive financial plan that addresses current and future requirements by understanding the long-term care needs of individuals with special needs and estimating the associated costs.

Government Assistance Programs and Benefits

Social Security Disability Insurance (SSDI)

SSDI is a federal insurance program that provides financial assistance to individuals with disabilities who have a sufficient work history and have paid into the Social Security system. SSDI benefits are based on the individual’s earnings record and can provide a monthly income to help cover the costs of living and long-term care.

Supplemental Security Income (SSI)

SSI is a federal program that offers financial assistance to individuals with disabilities who have limited income and resources. SSI benefits help cover basic needs such as food, clothing, and shelter. The eligibility criteria for SSI benefits include the following:

Having a qualifying disability.
Meeting specific income and asset limits.
Being a U.S. citizen or eligible noncitizen.

Medicaid and Medicaid Waiver Programs

Medicaid is a state and federal program that provides healthcare coverage to low-income individuals, including those with disabilities. Medicaid can cover a range of services, such as doctor visits, hospital care, and long-term care services. Medicaid Waiver Programs, also known as Home and Community-Based Services (HCBS) waivers, offer additional services and support to help individuals with disabilities live in their communities rather than institutions.

Other federal and state programs and resources

Various other federal and state programs may provide financial assistance or services to individuals with special needs, including:

Vocational Rehabilitation Programs: These programs help individuals with disabilities prepare for, find, and maintain employment through training, counseling, and job placement services.
Housing Assistance Programs: Programs like the Section 8 Housing Choice Voucher Program can help individuals with special needs secure affordable and accessible housing.
State Developmental Disability Agencies: These agencies provide various services and support for individuals with developmental disabilities and their families, including case management, respite care, and family support services.

Families should research and explore all available government assistance programs and benefits to maximize the financial resources available to support their loved ones with special needs. Applying for these programs can be complex, so seeking guidance from knowledgeable professionals or advocacy organizations is crucial to navigating the application process effectively.

ABLE Accounts

Overview of the ABLE Act and its benefits

The Achieving a Better Life Experience (ABLE) Act, enacted in 2014, created tax-advantaged savings accounts for individuals with disabilities, known as ABLE accounts. These accounts allow people with disabilities and their families to save and invest for current and future expenses without jeopardizing their eligibility for need-based federal assistance programs like Medicaid and Supplemental Security Income (SSI).

Eligibility criteria and contribution limits

Expansion of eligibility under the ABLE Age Adjustment Act: Originally, only individuals who became disabled before the age of 26 were eligible for ABLE accounts. However, the ABLE Age Adjustment Act, included in the omnibus spending bill passed in December, raised the age threshold for the onset of a qualifying disability to 46, expanding eligibility to an estimated six million more people.
Implementation timeline for the new rule: The expanded eligibility will not take effect until January 2026. Families must understand the new rules despite the delay and prepare for implementation.
Contribution limits: Anyone, including family members, friends, and employers, can contribute to an ABLE account up to a maximum of $17,000 for 2023. If a disabled person with an ABLE account works, they can contribute an additional amount from their earnings, up to $13,590 in most states, for an annual total of $30,590.

Investment options and tax advantages

ABLE accounts offer a range of investment options, allowing families to tailor their investment strategies based on their risk tolerance and financial goals. While no federal tax deduction exists for contributing to an ABLE account, earnings and withdrawals for eligible expenses are tax-free. Some states may also offer state tax breaks for contributions.

Tips for preparing for the new eligibility rules in 2026

For those who may qualify for an ABLE account under the new rules, educating themselves about the accounts and how they are used is crucial. While family members cannot save money in the disabled person’s name without jeopardizing government benefits until 2026, they can save independently to contribute the funds once the new rule takes effect. It is also essential to stay informed about any updates or changes in ABLE account regulations.

By understanding the benefits and eligibility criteria of ABLE accounts, families can use this valuable savings tool to secure a more stable financial future for their loved ones with special needs.

Private Insurance and Funding Options

Life Insurance

Life insurance can play a vital role in special needs planning, as it can provide financial support for the care of a special needs individual after the death of a parent or primary caregiver. There are different types of life insurance policies, such as term life and permanent life insurance (including whole life and universal life). Families should consult a financial planner or insurance professional to determine the most suitable policy.

Long-Term Care Insurance

Long-term care insurance can help cover the costs of long-term care services, such as in-home care, assisted living, or nursing home care. These policies can be beneficial for families with special needs members, as they can alleviate the financial burden of care expenses. However, it is essential to note that not all individuals with disabilities will qualify for long-term care insurance, and premiums can be costly. Families should carefully review policy options and weigh the benefits against the costs before purchasing long-term care insurance.

Special Needs Pooled Trusts

Special needs pooled trusts are a type of trust designed specifically for individuals with disabilities, allowing them to pool their resources with others who have similar needs. These trusts are managed by non-profit organizations, which can provide professional trust management and oversight at a lower cost than a traditional special needs trust. Pooled trusts can help preserve eligibility for government benefits while providing additional financial resources for the individual’s care and quality of life.

Education Savings Accounts (ESAs) and 529 College Savings Plans

Education savings accounts and 529 college savings plans can be used to save for a special needs individual’s educational expenses, including tuition, books, and supplies. While these accounts may not directly cover long-term care expenses, they can help reduce the overall financial burden on families by offsetting education costs.

Grants and Financial Assistance Programs

Various non-profit organizations, foundations, and charities offer grants and financial assistance programs for individuals with disabilities and their families. These programs can help cover the costs of medical treatments, therapies, adaptive equipment, and other necessary expenses. Families should research and apply for relevant grants and financial assistance programs to maximize the available financial resources.

By exploring and utilizing a combination of private insurance and funding options, families can create a more comprehensive and robust financial plan for their special needs loved ones, ensuring their long-term care needs are met.

Building a Comprehensive Special Needs Financial Plan

Assemble a team of professionals

When creating a comprehensive special needs financial plan, working with a team of professionals with expertise in various aspects of special needs planning is essential. This team may include the following:

A financial planner with experience in special needs planning
An attorney specializing in special needs trusts and estate planning
An insurance professional familiar with life insurance and long-term care insurance options
A tax advisor to help navigate tax implications and benefits associated with various planning strategies

Assess and prioritize financial goals

Families should work with their team of professionals to assess their financial goals and prioritize them according to their specific needs and circumstances. Some specific financial goals for families with special needs members may include:

Ensuring the long-term care and well-being of the individual with special needs
Saving for educational expenses
Providing financial stability for other family members
Planning for retirement and future financial needs

Develop a customized financial plan

Once the family’s financial goals are identified and prioritized, the professionals can help develop a customized financial plan that addresses current and future needs. This plan should include the following:

An assessment of the family’s current financial situation, including income, expenses, assets, and liabilities
A strategy for funding the long-term care needs of the individual with special needs, utilizing a combination of government assistance programs, insurance products, and private funding options
A comprehensive estate plan, including the creation of a special needs trust, if necessary
Regular reviews and adjustments to the financial plan as the family’s circumstances and needs change over time

Communicate the plan to family members and caregivers

Once the comprehensive special needs financial plan is in place, it is crucial to communicate its details to family members, caregivers, and other relevant individuals. This communication ensures that everyone involved in the care and well-being of the individual with special needs is aware of the financial strategies and can help support the plan’s implementation.

By taking a proactive approach and building a comprehensive special needs financial plan, families can help ensure the long-term care and financial stability of their loved ones with special needs.

Conclusion and Key Takeaways

Creating a comprehensive financial plan for long-term care is crucial for families of special needs individuals. Families can ensure their loved ones receive the necessary care and support by planning and preparing for the future. The key takeaways from this guide include the following:

Understand the unique financial challenges families with special needs members face, including the need for long-term care, government benefits, and preserving eligibility for assistance programs.

Utilize government assistance programs and benefits such as SSDI, SSI, Medicaid, and Medicaid Waiver Programs to maximize available financial resources for long-term care.

Take advantage of ABLE accounts as a valuable savings tool for individuals with disabilities, and be aware of the expanded eligibility rules that will take effect in 2026.

Explore private insurance and funding options, including life insurance, long-term care insurance, special needs pooled trusts, education savings accounts, and grants, to create a more comprehensive financial plan.

Assemble a team of professionals with expertise in special needs planning, assess and prioritize financial goals, and develop a customized financial plan that addresses current and future needs.

Communicate the financial plan to family members and caregivers, ensuring everyone involved in the care and well-being of the individual with special needs is aware of the financial strategies in place.

By following these steps and working with a team of professionals, families can create a robust and comprehensive financial plan for the long-term care needs of their loved ones with special needs.

About Mark Matos

IMPORTANT DISCLOSURES

Last updated: November 6, 2023
Standard Disclosure:Advisory Services provided through IC Advisory Services, Inc. – An SEC Registered Investment Advisor. Medley Advisory, LLC. Is not affiliated with IC Advisory Services, Inc Important Disclosures Page:. Click Here The Investment Center: Click Here Form CRS: Click Here The content on markmatos.net is for informational and educational purposes only and should not be construed as professional financial advice. Should you need such advice, consult a licensed financial or tax advisor. This material is for informational purposes only, as of the date indicated, is not complete, and is subject to change. It does not contain any investment advice and does not address any individual facts and circumstances. Any investment involves some degree of risk, and different types of investments involve varying degrees of risk, including loss of principal. It should not be assumed that future performance of any specific investment, strategy or allocation (including those recommended by Mark Matos) will be profitable or equal the corresponding indicated or intended results or performance level(s). Past performance of any security, indices, strategy or allocation may not be indicative of future results. The historical and current information as to rules, laws, guidelines or benefits contained in this document is a summary of information obtained from or prepared by other sources. It has not been independently verified, but was obtained from sources believed to be reliable. Mark Matos does not guarantee the accuracy of this information and does not assume liability for any errors in information obtained from or prepared by these other sources. Mark Matos does not give legal or tax advice. He is not affiliated with a legal or accounting firm, and he does not render legal, accounting or tax advice. You should contact an attorney or CPA if you wish to receive legal, accounting or tax advice. We strive to write accurate and genuine reviews and articles, and all views and opinions expressed are solely those of the authors. Please follow this link for disclaimers